Thursday, June 29, 2017

Early AM blog, courtesy of chemo steroids!

Blogging at 4 AM - giving up on trying to sleep while on this damn dexamethasone! Yesterday I did convince my oncologist to let me skip it on infusion days 2 and 3, but he thought skipping it yesterday when they gave me the oxaliplatin was a bad idea. I think they just don't want patients puking in the infusion room😝!

There is good news this week! Although my blood counts have dropped, esp RBC and hemoglobin (which I am generally low on anyway) nothing is scary low. At this point in the game (1/2 way in) my onc. thinks I'll probably be able to make it through all the treatments without a break or blood transfusions. When the chemo starts leaving my body I feel pretty good. I had a great weekend in coastal Maine last weekend (pre-chemo) with dear old friends and I was able to kayak with the seals, osprey and porpoise - horray! Getting back to the activities I love makes me happy. My hair is falling out, but not too horribly. Not sure if it is the chemo, or classic 2-month post-traumatic-surgery hair loss. I did lose hair about 2 months after my bike crash and surgery. And my weight seems to have stabilized at about 12 pounds lighter than what I was pre-cancer, which is a good thing. I had 12 to lose! Although tiring, work is going well. I got one of my big grant applications in to EPA to review this past week. Our attorney is still acting as Director of my division until I am back full-time so I don't have to worry about all my supervisory duties, etc. 

I hope you all have a GREAT 4th weekend! Steve is excited that we will finally get up to VT for a weekend and I should be recovered enough from chemo to celebrate a bit - maybe even to keep my tired ass up late enough for the fireworks!  πŸ’₯ πŸ’₯ ☄️☄️πŸ’₯πŸ’₯

Love you all!!  Jane 




5 comments:

  1. Happy to hear good news. Enjoy your weekend. Hope to see you when we come back. Kids cannot wait to tell you all about London. Best regards to Steve and Sage.

    Much love ❤️

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  2. Great to hear the good news! Have a wonderful weekend and love to you, Steve, Sage and Rory - Amy and Matt

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  3. Cathy on Willets CreekJuly 6, 2017 at 8:35 AM

    So glad you're doing so well! How cool to be kayaking with such fabulous wildlife! And I hope you had a great July 4th up in VT. If you continue doing well, maybe we can get you down here for some sailing and swimming in the ocean. We'd love to have the whole family, or we could see if we could get some FESers together. Let's talk when you have a moment. Love to your and the entire family.

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  4. Well, Jane-dear-the-unstoppable, I'm not surprised that you're finding ways to take in all that summer has to offer anyway! :-)

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  5. Hi Darlin, So sorry we keep missing each other! Good news on hopefully no transfusions and on forward motion. My your hair stay on your beautiful head:)") Happy to hear you have days where you can enjoy what you love !Sending you much love and shining a light on your tenacity, bravery, and strength!
    Love
    Selina

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