Saturday, November 12, 2016

Still in a bit of shock

Dear Friends and Family, 

Last night we received the results of the biopsies the surgeon took Tuesday and are still in a bit of shock. Tests confirmed an aggressive adenocarcinoma in the anal canal with an associated Extramammary Paget's Disease of the area. Very rare and not well understood cancers. 

At this point doctors are recommending a full course of chemo and radiation, followed by surgical removal of the entire lower colon, etc. Before any treatment starts, there are a few more tests that would need to be done to rule out spread to/from elsewhere. 

Jane wants to consult with doctors at Sloan Kettering who have some experience with these cancers. She also wants to process the pros and cons of an intensive chemo radiation treatment for a hi-recurrence disease (Paget's) followed by a somewhat disabling surgery, versus the less painful (but more uncertain) palliative care only option. 

Whatever path we decide upon, we really appreciate you all being there for us. Thank you for your love during this difficult time. ♥️

Posted by at

10 comments:

  1. UnknownNovember 12, 2016 at 5:07 AM

    Thanks for the update. Thinking about you alot and want to support you. Please let us know how we can help. Our love to you Jane

    ReplyDelete
  2. Brenda LindNovember 13, 2016 at 3:38 AM

    HUGS AND MORE HUGS to both of you, Steve and Jane ♥

    ReplyDelete
  3. SabinelexNovember 13, 2016 at 12:44 PM

    Dear Jane and Steve, Know that you are not alone and so many of us are thinking of you and holding you. Let me know when you are ready for some company. Love, Sabine

    ReplyDelete
  4. MarinaNovember 13, 2016 at 2:20 PM

    Hugs and love to you ❤️️

    ReplyDelete
  5. selina maitreyaNovember 14, 2016 at 5:37 AM

    Thanks for update Steve. Sending lots of love and healing energy.
    Please let me know if there is anything I can do to be of help 24/7.
    Love
    Selina

    ReplyDelete
  6. Michele and BradNovember 14, 2016 at 6:45 AM

    Jane and Steve, our hearts and thoughts are with you. We are here to help and support you however we can. Love from both of us.

    ReplyDelete
  7. UnknownNovember 14, 2016 at 9:40 AM

    Jane and Steve, all my love to your both. I'm putting my arms around you from afar. Ben

    ReplyDelete
  8. Cathy on Willets CreekNovember 14, 2016 at 3:46 PM

    Oh my wonderful Juanita! I love you so much! And you too, Steve! Please hurry down to Sloan Kettering - they are the pros to see about rare cancers. Nobody else has the money to support the research. I wish I could do something to help! Just know I send you both all my love1

    ReplyDelete
  9. UnknownNovember 15, 2016 at 9:23 AM

    My darlings — among all the love and support I send, I just want to say that (to the extent I can) I recognize the insane stress of having to metabolize SO much information SO quickly and then make choices that are sound and right for you. It's a terrible job and I'm beyond sorry you're in the thick of that now. Hope the Sloan Kettering consult is soon and uber-helpful. Wish I could run over to you for physical hugs! Hope you're feeling the massive ones from here . . . 💜

    ReplyDelete
  10. UnknownNovember 15, 2016 at 9:24 AM

    Forgot to say: that last one was mine — Debra

    ReplyDelete

Subscribe to: Post Comments (Atom)