Hello Friends -
Here is my promised happy post! 24 days out of chemo-radiation today and I was able to dress for work without padding myself with burn cream and bandages. I am starting to feel pretty normal again and able to move about much more comfortably. Horray! This past weekend Steve and I celebrated our birthday by venturing out on a cross-country ski at Windblown. I was able to ski 5 miles and it felt wonderful! Also, my intestines seem to be recovering and I am thrilled to be able to eat fruits and vegetables again.
This Friday I will have a re-biopsy of the new lump found in the area of my Paget's disease. The first biopsy (done by a NP) may not have been sufficiently deep to adequately rule out Paget's so an experienced doctor will do this one. We are keeping our fingers and toes crossed that it is NOT Paget's and we can proceed with the treatment plans as is.
Speaking of treatment plans - my surgery date has been set for April 4. We are busy talking with doctors, plastic surgeons (for skin grafts), ostomy nurses, and a few folks who have been through this surgery before and can help us plan for post-surgery, setting up the house, and recovery. I am also working to get myself mentally prepared for both the surgery and aftermath. Although I am mourning the upcoming loss of important functional body parts - I know that this surgery is the path to getting rid of these nasty cancers and long-term survival!
I am told that I will be in the hospital for 7-10 days post surgery, then will have 6 weeks of medical leave where I will be somewhat confined while I adjust to my "internal remodel" and life as a "bag lady". Steve will be setting up a post-surgery visit schedule via this blog and I will welcome your smiling faces to help cheer me up!
Thank you everyone for the continued support. I really couldn't do this without you all!
I am really cheered to hear that you're feeling better! And I am just in awe of your courage and positive attitude as you take on the challenges ahead. I will be happy to help in any way I can during your rehabilitation, and to share in the good times I'm sure are to come. And I can't wait to see you this weekend!
ReplyDeleteSo glad that your birthday celebrations were awesome!Many many more to come. You've got alot ahead my dear but one step at a time and
ReplyDeleteyou will prevail!!!! Sending you and Stevie tons of love