Saturday, November 11, 2017

What Cancer Taught Me (pretty long blog)

It seems important to reflect on the past year, while the difficult and poignant events are still fresh in my mind. Cancer has actually taught me a lot. It is strange to think that going through your worst nightmare could leave you feeling grateful, stronger, and wiser, but that is what has happened. Yes, I got an aggressive "CANCER" in my 50's. By "CANCER", I mean a disease that is aggressive, deadly, rare, and has defied most modern-day treatments. Mine was not a (lower case) "cancer" that is well understood, easy to treat with multiple treatment options, and a history of good outcomes. Nonetheless, my CANCER taught me many important things that I believe will make the rest of my life happier in many ways. Some of the things I have learned from having cancer:

1. Every second of life is precious, even those that are painful and difficult. I now try to be aware of that at all times, and it helps me keep a brighter outlook.

2. There is absolutely no guarantee of good health or smooth sailing in life - suffering is part of life. Though I knew this before cancer, I somehow had a sense of expectation, maybe even entitlement, that my life would be healthy, happy, and fairly easy. I felt a blind invincibility that has now been shaken by a potentially fatal disease. But this realization actually brings me more peace and happiness than I had before. Reading Buddhist philosophy has helped me grasp this. Buddhist Monk Thich Nhat Hanh has written: "The greatest miracle is to be alive. We can put an end to our suffering just by realizing that our suffering is not worth suffering for! How many people kill themselves because of rage or despair? In that moment, they do not see the vast happiness that is available. Mindfulness puts an end to such a limited perspective. The Buddha faced his own suffering directly and discovered the path of liberation. Don’t run away from things that are unpleasant in order to embrace things that are pleasant. Put your hands in the earth. Face the difficulties and grow new happiness.”

3. I found that friends and family were the most powerful resource to help pull me through times of darkness. They helped fill the dark, scary spaces with love, light and encouragement. I have learned to value these connections above all else. So many people helped me carry my burden this past year, making it lighter and so much easier to endure.

4. Things can always be worse. Yes, I got an aggressive CANCER in my 50's and had to endure a year of difficult treatments, a life-altering surgery, and I lost most of my "trademark" red hair. But it could have been worse! I am fortunate to have good health and a strong body, a job with great health insurance, access to a wealth of great doctors and hospitals, and an amazing support network of friends and family. I know people go through tough cancer battles without the above, or with many more complications than I had. I feel fortunate.

5. The cancer I suffered does not have to be have pervasive nor permanent effects on my life. I can move on, get back to a productive work life, enjoy time with friends and family, travel, and many of the activities I love. Realizing that each day  our lives are full of joyful moments, even in dark times, has helped me be more open to experiencing them, and more happy overall.

6. Helping others has helped me put my own issues in perspective and to see that I am not alone in such struggles. I have been asked to be a mentor to a few friends across the globe who have been diagnosed with this rare cancer, and some who are dealing with the difficult decision to have APR surgery. I have tried to be helpful and positive with the people I have mentored, while also being honest about the difficulties. Sharing my experiences and thoughts with others in similarly difficult situations has helped me feel that maybe my experiences can help others have an easier go of it, and has helped me feel less alone.

7. I have discovered that humans, including myself, can be more resilient, both mentally and physically, than we might ever suspect. On Election Day last year, I went "under" for what was supposed to be a fairly simple excision of a small isolated tumor. When I woke up to my surgeon's grim face telling me they found that the cancer had spread both internally and externally (I had 2 cancers) I was devastated! For several days I walked around like a zombie, crying and cursing and "why-me-ing" a lot and thinking there was no way I could undergo the extensive and life-altering surgery and treatments that were now my only option. But, after much reading, meditating, and talking to others who helped me reason through all this, I was able to shift my thinking and move forward in a more positive way.
My thinking is quite different now. The other night I was driving a dangerous road, and a thought popped into my head: I could have a horrible accident and end up in the hospital. And then I thought - PSSSSHHHT! -I've already been through something worse than that, and I survived!

I certainly do not wish illness nor traumatic life-events on any of you! But this past year has shown me that "shit happens" to us all! I hope, should "shit happen" to any of you, that you can get through it in as positive a manner as possible. Please feel free to use me as a resource if I can be helpful in any way. You have all been SO helpful to me in so many ways. I never could have gotten through the past year without your support. I love you all. 😘

Sunday, October 29, 2017

Healing


It feels SO great to be getting my life back!! I am back to work full-time and enjoying being productive again. Since I finished treatments, I have made up for time lost over the summer and have packed in some great active and adventurous fall weekends. The last weekend in September I felt well enough to hike in the White Mountains with pals from grad school. And in early October we explored the Sawatch Range and hot springs in the Rockies, then Colorado College parents weekend. And I am writing this as we prepare to head home after a week in Oregon. We had a blast attending a wedding in Crater Lake and exploring the Willamette Valley and Corvallis area with Marion. 

I am happy to report that, other than some peripheral neuropathy, my chemo and radiation symptoms are quickly dissipating. I am taking probiotics and vitamins to heal my body, exercising, and gaining a bit more endurance every day. I have had no bad intestinal pain for several weeks now. It feels SO GOOD to feel good again! 

I have been reflecting a lot on the challenges of the past year and the wild physical and emotional swings that I have experienced. I want to get some of my thoughts down here in the hope that they may be helpful to others who might have to face cancer, a life-threatening diagnosis, or other life traumas. I will do this in my next post. 

Saturday, September 2, 2017

DONE!!!

As the chemicals from infusion #8 slowly leave my system, it is sinking in that I'm DONE with treatment!! Just in time - I developed involuntary gut-wrenching nausea just getting near the infusion room or looking at the little cups of cranberry juice they give me during treatments. Bllllleeeeeaaaaaaaacccchhhhh! Infusion #8 was the worst of them all - but - it is OVER!! 'Nuff said on that... time to move forward! 

So, now I am in the wait-and-see phase of treatment. People talk about this phase being emotionally difficult because you are no longer meeting with doctors every week, no longer actively "doing something" to fight your cancer. You are slowly recovering from treatments, waiting for the next scan, fingers crossed that no single cancer cell escaped the onslaught of your treatments. This period could be especially tough for me given the aggressiveness, treatment-resistance, and lack of information on my particular cancer. 

I don't want to waste any more precious moments worrying about cancer, I want to maximize my enjoyment of life! I plan to visit with a cancer counsellor in the upcoming months to get some good techniques to accomplish this. 

I also want to spend time reflecting on the past year. Dealing with a life-threatening cancer dramatically changes your perspective on many things. I now believe that the effect that many call "post-traumatic growth" is very real. I hope to make the most of the many lessons to be learned from the past year. I will write more on this as the thoughts become clearer in my mind, but for now, know this: support from friends and family can fuel your mind and body to make it through even your worst nightmares. I can't thank you all enough for being by my side throughout the last year, pulling me through. Your love has made all the difference. ❤️

Friday, August 25, 2017

The first day of the rest of her life (Jane finished her treatments)

Jane had the pump removed for the final time (hopefully).  Treatments are over!!!  This treatment hit her hard and she is pretty low energy and nauseous.  Still stealing off for anniversary celebration in Quebec.

Jane will update soon.

Thank you all for caring, loving, and keeping Jane in your thoughts.


Thursday, August 24, 2017

Hooked up to LAST infusion!

Early AM steroid-induced blogging again - but hopefully this is the last of such nights! Although my platelets have dropped further and I had to have some bleeding on my stoma checked, my oncologist allowed me to proceed with the last chemo infusions yesterday. When the surgeon who checked my stoma casually said "let's just postpone chemo for a while", I involuntarily screamed "NO"! Between my reaction, the ostomy nurse's opinion that the stoma was healing, and my oncologist's more laissez faire attitude, I was allowed to proceed. The chemo effects are pretty nasty this time. Lots of nausea, muscular cramping, tiredness...BUT I am so pleased that I'm going to have this pump removed (hopefully for the last time) this Friday! 

Cancer certainly runs you through the full gamut of human emotions. For the first 4 months after diagnosis I experienced acute anger, denial, confusion, self-pity and anguish. But as treatments started I came to realize that denial, self-pity and anguish were self-destructive, and I really needed to rally all my emotional resources for the task at hand. I gradually came to resignation, and then finally acceptance. 

Recently, I reflected to Steve (who suffered through many bouts of my crying and "why me-ing" in the first 4 months) that it had been months since I had cried. Well, yesterday after the nurses installed the home-chemo pump for the last time and toasted with tiny cups of ginger-ale, the floodgates opened again. As I walked out the door at Lahey, I realized that the tears really hurt, both as they passed through my inner tear ducts and as they wet my face. When I realized that the chemo in my body was likely coming out in my burning tears, I stifled the emotion and washed my face. I will need to save the indulgence of tears for a future date. I am sure many opportunities will arrive in upcoming months as I adjust, recover from, and reflect upon this year. 

Have a wonderful week everyone! Looks like we're in for a stretch of lovely weather and a delightful late-summer weekend. 🌟Please enjoy every moment, dear friends and family!!

Tuesday, August 22, 2017

Slight complication?

I am up at 2 AM the night before my (hopefully) last chemo treatment, worrying. Yesterday I discovered a bleeding/scabbing issue with my stoma. The doctors think it might be related to chemo, perhaps low platelets. I was asked to come in early Wednes to be checked, stoma as well as blood. SO....back to possible delay in finishing treatment, we'll see. UGH - just want to be DONE so I can start healing.

I'll post when I have more info. Thanks for hanging in there with me!

Thursday, August 17, 2017

Platelets rebound!

Just heard from my oncologist. Blood test results they took yesterday were actually a bit higher, so I am back on schedule to finish up my last infusions August 23-25. Never thought I’d be happy to hear I have an infusion - but YAY! Must have been those healthy blueberries that I ate this weekend in Vermont. And all the good juju y'all sent me, of course!